Journal of IiMER Volume 10 Issue 1 A Centre of Excellence for ME An Opportunity for Major Progress in Diagnosis, Treatment and Research into Myalgic Encephalomyelitis Since 2010 Invest in ME have been promoting the concept of a Centre of Excellence for ME and we have been steadily building a foundation of research that can be the basis for such a Centre. Our Executive Summary for MPs has been updated and is here – http://www.investinme.org/Documents/C ofE/Invest%20in%20ME%20Research% 20UK%20Centre%20of%20Excellence%2 0for%20ME%20Executive%20Summary %20for%20MPs%20Status%20June%2 02016.pdf This is a summary of the current status regarding the Invest in ME Research proposal for a Centre of Excellence for ME Research and Treatment based in Norwich, UK. Background A seriously inadequate standard of medical care exists for ME patients in UK Very little and fragmented biomedical research into the condition Invest in ME (Charity Nr. 1114035) www.investinme.org Page 26 of 77 Confusion between ME and chronic fatigue has led to unscientific research and ineffective treatments Medical professionals lack understanding of, and training in ME – a serious risk of mis-diagnosis and missed diagnoses exists Medical students are taught from a curriculum which uses flawed or out of date information about ME ME identified as both highlighted area and high priority by MRC – yet MRC has continually failed to fund adequate biomedical research into ME ME is leading cause of long-term absence from school due to sickness for students and teachers ME is recognised by the Department of Health as a chronic neurological illness yet official guidance and management are aimed at mainly changing patients’ “false illness beliefs” In 2015 The USA Institutes of Medicine (IOM) recognised ME as a serious, chronic disease June 2016
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