Journal of IiMER Volume 10 Issue 1 A Centre of Excellence for ME An Opportunity for Major Progress in Diagnosis, Treatment and Research into Myalgic Encephalomyelitis Since 2010 Invest in ME have been promoting the concept of a Centre of Excellence for ME and we have been steadily building a foundation of research that can be the basis for such a Centre. Our Executive Summary for MPs has been updated and is here – http://www.investinme.org/Documents/C ofE/Invest%20in%20ME%20Research% 20UK%20Centre%20of%20Excellence%2 0for%20ME%20Executive%20Summary %20for%20MPs%20Status%20June%2 02016.pdf This is a summary of the current status regarding the Invest in ME Research proposal for a Centre of Excellence for ME Research and Treatment based in Norwich, UK. Background  A seriously inadequate standard of medical care exists for ME patients in UK  Very little and fragmented biomedical research into the condition Invest in ME (Charity Nr. 1114035) www.investinme.org Page 26 of 77  Confusion between ME and chronic fatigue has led to unscientific research and ineffective treatments  Medical professionals lack understanding of, and training in ME – a serious risk of mis-diagnosis and missed diagnoses exists  Medical students are taught from a curriculum which uses flawed or out of date information about ME  ME identified as both highlighted area and high priority by MRC – yet MRC has continually failed to fund adequate biomedical research into ME  ME is leading cause of long-term absence from school due to sickness for students and teachers  ME is recognised by the Department of Health as a chronic neurological illness yet official guidance and management are aimed at mainly changing patients’ “false illness beliefs”  In 2015 The USA Institutes of Medicine (IOM) recognised ME as a serious, chronic disease June 2016

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