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N0 03 | May 2016 | www.mycyfapp.eu/es/ | F Mycyfapp | T Mycyfapp | P Mycyfapp | A Mycyfapp 2ND PROGRESS MEETING TOOK PLACE IN MUNICH IN JANUARY 2016 Members of the whole consortium met in Munich (Germany) last 18th and 19th January. Multi-disciplinary workshops were set up in order to discuss about the goals reached and to make arrangements on the main topics that the APP will include. NUTRITIONAL RECOMMENDATIONS FOR PATIENTS AND FAMILIES. The nutritional recommendations were derived from the MyCyFAPP European survey. They are based on nutritional habits and dietary patterns of patients with CF and are adapted to national needs. They will be: - Focused on addressing the most common nutritional unbalances. - Full of practical and tangible examples of recommended meals and dishes. - Integrated in the APP: interactive, multimedia, individually tailored contents. - Written by experts in CF nutrition and care. WHICH IS THE OPTIMAL DOSE OF ENZYMES? First patients have already joined the pilot study aimed at finding out the optimal dose of enzymes. Participants from all the participating centres will follow the same 24 hour menu. They will try an enzymes dose for each test meal according to the in vitro digestion studies to see how they work in their bodies. The study will last until the end of 2016 in three different stages. To see the video visit “mycyfapp” youtube page. DIFFERENCES IN NUTRITIONAL PATTERNS AMONG THE PARTICIPATING COUNTRIES. We have found that in Portugal, Spain and Italy main meals consist of several courses with a main carbohydratesbased dish, mainly pasta and rice. On the other hand, in Belgium and The Netherlands, main meals generally consist of one bread-based dish. Low fish and fruit and high sweets and snacks consumption is the common dietary pattern among all the participants. The most fat-rich meal is dinner in all the countries. of 2

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