system, which can make it even more difficult to get a diagnosis at all. In the recent Association's Alzheimer's Disease Facts and Figures special report on Race, Ethnicity and Alzheimer's in America, it was found that: All of these factors and findings help paint a broader picture on how and why Alzheimer’s disease and dementia disproportionately affect the Black and African American communities. Only 20% of Black Americans say that they have no barriers to excellent health care and support for Alzheimer's or other dementias Half of African Americans say that they have experienced discrimination while seeking care for a person living with Alzheimer's and report being confident they can access culturally competent care.medical care. Only 53% of Blacks believe that a cure for Alzheimer's will be distributed fairly, without regard to race, color or ethnicity. PERCEPTIONS OF CLINICAL TRIALS A history of exclusion from medical trials and a lasting history of discrimination from the medical establishment, including but not limited to the infamous Tuskegee syphilis study, contribute to high levels of mistrust of clinical trials among Black Americans. Nearly two-thirds of Black Americans (62%) believe that medical research is biased against people of color. The most common reasons Black Americans report they do not want to participate in a clinical trial are: 20% 1/2 53% The fear of being a guinea pig, which 69% of African Americans name as a concern. Black Americans are also far more likely than other racial groups to be concerned about getting sick from treatment, with 45% describing this as a reason. ALZHEIMER However, Black Americans are the least likely group to report cost as a concern, with only 24% saying cost and time are reasons not to participate.
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