Journal of IiMER May 2025 potentially boost cellular energy. Participants’ symptoms are tracked for two weeks before and after the intervention using the FUNCAP27 questionnaire, online cognitive tests, activity monitors, and sleep diaries. The study, which received ethical approval from UEA, lasts seven weeks per participant, covering baseline, intervention, follow-up, and feedback. Led by Dr Katharine Seton, IiMER Ian Gibson Fellowship holder, the study hypothesises that PBM may improve physical and cognitive function by enhancing mitochondrial ATP production. The team is also piloting Mantal, an online research management platform, to facilitate participation for those who are house- or bed-bound-ensuring the study is accessible and patient-inclusive. The Light ME Up study is a modest yet significant step in ME research, reflecting IiMER and Quadram’s commitment to exploring novel interventions. By testing PBM’s feasibility and refining remote research methods, the study lays groundwork for scalable trials and enhanced patient engagement. From Broken Wings to Clearer Skies: Finding New Paths for Connection Invest in ME Research has been active on Twitter (now X) since the early days of the platform's existence. Twitter has long served as a valuable tool for raising awareness about the charity’s work, including the research being funded and facilitated at the Norwich Research Park centre. Yet it will not have escaped many people's notice that times have changed. The last thing people with ME, or their families and carers, need is added stress or an environment that many now consider toxic and unproductive. Despite this, a platform is still necessary for learning, sharing, and discussing ME-related issues and progress. Invest in ME Research has been active on Bluesky for some time, and we are gradually sharing more of our news on this platform. Our website will be updated in the next revision to include this new platform. If you are on Bluesky, you can find us at: https://bsky.app/profile/investinmeresearch.bsky.social Invest in ME Research 2026 International ME Conference Week Continuing our commitment to international collaboration, Invest in ME Research has already set dates for International ME Conference Week 2026 – 25–29 May 2026. This will also be the twentieth anniversary of the charity being formed - and twenty years since our very first conference. Invest in ME Research Page 10 of 43
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