Journal of IiMER implementing the Convention. Cooperation and coordination The definition of disability is an interesting thing From Art.1 – Purpose of CRPD (‘Convention of Rights of Persons with Disabilities’) include: “Persons with disabilities include those who have long-term physical, mental, intellectual or sensory impairments which in interaction with various barriers may hinder their full and effective participation in society on an equal basis with others.” “(e) Recognizing that disability is an evolving concept and that disability results from the interaction between persons with impairments and attitudinal and environmental barriers that hinders their full and effective participation in society on an equal basis with others” h) Recognizing also that discrimination against any person on the basis of disability is a violation of the inherent dignity and worth of the human person, (i) Recognizing further the diversity of persons with disabilities, (j) Recognizing the need to promote and protect the human rights of all persons with disabilities, including those who require more intensive support, Mutual cooperation is important because the Convention strengthens the aspect of international cooperation in Art. 32. The recognition of the importance of independent living and understand reasonable accommodation in an ageing society is not a burden but rather an opportunity. But how because it is a crucial problem we need to fight. Understanding the spirit of the CRPD in terms of research (g) To undertake or promote research and development of, and to promote the availability and use of new technologies, including information and communications technologies, mobility aids, devices and assistive technologies, suitable for persons with disabilities, giving priority to www.investinme.org ME STORY “I have since been sent to another neurologist after my doctor found I was Rhomberg's positive, who made me walk, did a scratch test on my feet, checked the weakness in my legs, and said quite rudely, "you have ME, I am not going to waste time doing tests on you" And that was it. I walked away feeling like I had wasted this man's time. I pray one day a cure will come our way.” - Rowan “Personal Stories of ME Sufferers “ http://www.investinme.org/mestorygall ery1.htm Page 62 of 82 technologies at an affordable cost – Art. 4 – general obligation Recognition of available good practices and possible overlapping interest Art. 4 is quite relevant to the recommendation of good practices we all already heard today because when it comes to more efficient lobby work and the current situation of the EU approach towards rare diseases including the existing cooperation among Member States is very important to understand. Planning and implementation Identifying trends in technology, societal phenomenon and legislative and non-legislative procedures in the EU Parliament in order to visualise and understand how the international bodies and United Nations operate. In relation to this it is important to present and identify the costs and benefits to society and the communities. It is also worthwhile to explain what happens if more people can contribute to society.

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