Journal of IiME Volume 8 Issue 1 Together with Dr. José Montoya, he was instrumental in the conception, design, and execution of the EVOLVE study - a placebocontrolled, double-blind study of a subset of chronic fatigue syndrome patients with evidence of viral infection. Dr. Kogelnik worked with Dr. Atul Butte in translational informatics to determine patterns that indicated a high risk for adverse events in paediatric patients at Lucille Packard Children's Hospital. He is the Medical Director of the Open Medicine Clinic - a community-based research clinic focussed on chronic infectious diseases, neuroimmune disease, and immunology. Dr. Kogelnik has published numerous scientific papers and book chapters, is an Editor of Computers in Medicine and Biology, and is a Consulting Assistant Professor at Stanford University. With the Open Medicine Institute, he has led the formation of CFS and Lyme Registries and Biobanks as well as creating an infrastructure for providers to collect better data and implement clinical trials across a network of sites. #IIMEC9 Abstract: Diagnosis/Treatments and ME in USA An update of OMI collaborative projects current and planned will be given, including the Population Survey of Cognition in ME/CFS, The effect of the MTHFR gene on the treatment of ME/CFS, and the OpenMedNet longitudinal survey study. The Population Survey of Cognition and ME/CFS is a large-scale survey of scientific measures of cognitive function across the spectrum of ME/CFS with subgroups being evaluated before and after treatment (n=4000). The MTHFR study is evaluating the effect of treatment of ME/CFS patients with MTHFR gene abnormalities with methyl folate and methyl B12 (n=120). OpenMedNet Survey study is giving us insight into the distribution of the disease and natural course of disease (n=100,000). We will summarize upcoming directions and how the ME/CFS community can participate. May 2014 Dr Amolak Bansal Consultant Clinical Immunology and Immunopathology, Epsom and St. Helier University Hospitals NHS Trust, Surrey, UK Dr. Bansal trained in immunology and allergy from 1989 to 1993 at St. Mary’s Hospital in Manchester and at Hope Hospital in Salford. From here he spent five years (1993-1997) as Senior Lecturer and Consultant in Clinical Immunology in the Department of Medicine at the Princess Alexandra Hospital in Brisbane, Australia. From 1997 to the present date Dr. Bansal has worked as a Consultant in Clinical Immunology and Immunopathology at Epsom and St Helier University Hospital. Dr Bansal’s key interests lie in allergy, autoimmunity, CFS/ME and immunodeficiency. #IIMEC9 Abstract: Diagnosis/Treatments and ME in UK The diagnosis of CFS/ME is often challenging as the symptoms do not fit commonly encountered conditions and there are no diagnostic tests currently. It is therefore a diagnosis of exclusion. However, the delayed post-exertion malaise after physical and mental overactivity as well as the hypersensitivity to sounds and lights and the neurocognitive dysfunction are rarely if ever seen collectively in any other condition. Unfortunately, the precise mechanism for these highly disabling symptoms remains unclear. The criteria used to confirm CFS/ME in research and particularly the operationalisation of these criteria has been the subject of much controversy. The deficits in the early criteria appear to have been eliminated but at the expense of additional complexity. Invest in ME (Charity Nr. 1114035) www.investinme.org Page 47 of 52

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