Journal of IiME Volume 8 Issue 1 ° Jonathan Edwards, Emeritus Professor of Connective Tissue Medicine at UCL became the charity’s clinical trial advisor in July 2013 ° A study looking at B cells in ME patients is ready to start at UCL in London ° Fundraising is ongoing for a clinical trial to treat ME patients with rituximab, a monoclonal antibody used to treat certain types of cancer. ° Over £300K has been raised so far of the initial target of £350K and UCL has expressed interest in performing such a trial ° Professor Edwards has been working with the Norwegian Bergen researchers and the charity set up a visit to Bergen in September 2013 Hypothalamus Study ° A study looking at antibodies binding hypothalamus has been accepted to be performed by Dr Bansal at St Helier and Epsom NHS Trust Hospital Invest in ME is therefore asking Norfolk MPs to engage actively with this project with a view to securing this final, and vital, elements of the project. Further details: Invest in ME email: info@investinme.org FURTHER READING University of East Anglia http://www.foh.uea.ac.uk Institute of Food Research http://www.ifr.ac.uk Norwich Research Park http://www.nrp.org.uk/cms.php?pageid=1 Norfolk and Norwich University Hospital http://www.nnuh.nhs.uk TGAC - The Genome Analysis Centre http://www.tgac.bbsrc.ac.uk EDP News Story http://www.investinme.org/Medianewspapers.htm FAQ September 2011 http://bit.ly/180Iod0 One of Sue's sons has been severely affected by M.E. and other related conditions for many years. Her book has ISBN code 978-0-9574948-0-0. Sue was interviewed by Kath, at Wythenshawe local radio, on her programme, 'Disability Matters'. As a result of her suggestion, I contacted the Royal National Institute for the Blind, who are now making a large-print version of the book, and when funds allow, a Braille version! Sue's MATRIX slot is here - click here May 2014 Rafi Brown and the Candy Floss Kid Sue Stern has raised over £1000 by taking a MATRIX slot and donating proceeds to IiME from sales of her children's novel last year - just a year ago. Invest in ME (Charity Nr. 1114035) www.investinme.org Page 38 of 52

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