Journal of IiME Volume 7 Issue 1 other CCGs. This in turn would complement the research database thus increasing knowledge and awareness of treatments. Models of care and appropriate care could be developed with packages for people with severe presentations. FUTURE DEVELOPMENTS This model would be developed in the future with an ambulatory service and/or tele-medical services being employed for those who are too ill to attend the hospital examination. Phlebotomy services would be provided for home visits to be made to allow the severely affected to participate in the research and allow treatments for these disenfranchised patients. We would seek to establish additional biomedical research projects to be undertaken by the university which would increase the knowledge about the disease and facilitate development of treatments for patients. In partnership with the charity more training courses would be arranged with visiting experts (researchers and clinicians) being able to share experiences and data and facilitate more education about the disease. Future developments would see the potential of referrals from other areas (and other countries) to be created thus generating income and helping to establish the translational research and treatment facility as the foremost facility in Europe for treating myalgic encephalomyelitis. Our aim is to build sustainable and developing collaborations with translational biomedical research at the heart of all research. FURTHER READING University of East Anglia http://www.foh.uea.ac.uk Institute of Food Research http://www.ifr.ac.uk Norwich Research Park http://www.nrp.org.uk/cms.php?pageid=1 Norfolk and Norwich University Hospital http://www.nnuh.nhs.uk TGAC - The Genome Analysis Centre http://www.tgac.bbsrc.ac.uk IiME BIOMEDICAL RESEARCH FUND Our long term objective is to establish a UK Centre of Excellence for Biomedical Research into ME. We will continue to campaign for this facility to be established. We welcome all support. Donations to the Invest in ME Biomedical Research Fund will be used to support the establishment of this facility. We hope to continue raising funds for other Invest in ME (Charity Nr. 1114035) EDP News Story http://www.investinme.org/Medianewspapers. htm MP Executive Summary September 2011 http://www.investinme.org/Documents/Biome dical%20Research%20Facility/MP%20Exec%20S ummary%20September%202011.pdf FAQ September 2011 http://bit.ly/180Iod0 (May 2013) projects and until external research grants are available. http://bit.ly/qkjD5K HOW TO LEARN MORE Contact Invest in ME at info@investinme.org. SUPPORT US Help us by contributing to the Invest in ME Biomedical Research Fund for ME – http://tinyurl.com/ydh6whu Our JustGiving page is here - http://www.justgiving.com/investinm-e www.investinme.org Page 13 of 36
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