Journal of IiME Volume 6 Issue 1 (June 2012) of the symptom patterns felt directly by a patient in dynamically congruent patterns observed within the under-overlying causal systems at different OMIC scales (genomic, cellular, organ, physiological system, as well as at the emergent organismic, organismic/environmental/ epidemiological, etc. scales. What is in process for our ICC endeavour are the preparation of an ME Physicians’ Primer/Guidelines and the preparation and testing of an International Symptom Scale to improve cross-standardization of symptom questioning when comparing groups of patients where clinical epidemiological and other statistical studies are being planned. guidelines for which many in the ME community have been campaigning to be adopted as the standard set of guidelines for diagnosing ME. ME FACTS 1978: The Royal Society of Medicine accepted ME as a nosological entity. The Canadian Guidelines Invest in ME are the UK distributors for the Canadian Guidelines. Described even by NICE as “the most stringent” guidelines available these are proper, up-to-date clinical guidelines which can also be used as a base for research criteria. Findings from the study by Leonard A. Jason PhD (Comparing the Fukuda et al. Criteria and the Canadian Case Definition for Chronic Fatigue Syndrome) indicated that the Canadian criteria captured many of the cardiopulmonary and neurological abnormalities, which were not currently assessed by the Fukuda criteria. The Canadian criteria also selected cases with 'less psychiatric co-morbidity, more physical functional impairment, and more fatigue/weakness, neuropsychiatric, and neurological symptoms' and individuals selected by these criteria were significantly different from psychiatric controls with CFS. The Canadian Guidelines provide a means for clearly diagnosing ME and were developed specifically for that purpose. They are an internationally accepted set of Invest in ME (Charity Nr. 1114035) ME STORY “I have since been sent to another neurologist after my doctor found I was Rhomberg's positive, who made me walk, did a scratch test on my feet, checked the weakness in my legs, and said quite rudely, "you have ME, I am not going to waste time doing tests on you" and that was it. I walked away feeling like I had wasted this man's time. I pray one day a cure will come our way.” - Rowan - “Personal Stories of ME Sufferers - http://www.investinme.org/mestorygall ery1.htm www.investinme.org Page 12 of 108
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