Journal of IiME Volume 5 Issue 1 (May 2011) PRESENTERS at the 6th INVEST in ME INTERNATIONAL ME/CFS CONFERENCE were considered recovered. Eighteen subjects (18/25 or 72%) had "remitting illness", and five subjects had "persisting illness" (5/25 or 20%). The remainder of the study consisted of characterizing illness severity in the "remitting illness" group and the "persisting illness" group. All subjects in the persisting illness group were severely disabled and acknowledged their disability. Of surprise was that many subjects in the "remitting illness" group was also disabled yet perceived themselves as doing well. Most in this group had altered lifestyles so that they were able to work part time, or had elected to stay at home as parents. The variations between perceptions of health and scores on disability questionnaires led to the conclusion that the majority of subjects in this 25 year follow up study had "health identity confusion, and that this "health identity confusion" should be considered an anticipated outcome of ME in adolescence." 1. Bell D, Bell K. Chronic fatigue syndrome: diagnostic criteria [Letter]. Ann Intern Med. 1988;109:167. 2. Holmes G, Kaplan J, Gantz N, al e. Chronic fatigue syndrome: a working case definition. Ann Intern Med. 1988;108:387-9. 3. Bell D, Bell K. Chronic fatigue syndrome in childhood: relation to Epstein-Barr virus. In: Ablashi D, editor. Epstein-Barr Virus and Human Disease; 1989 1989; Rome, Italy: Humana Press; 1989. p. 412-7. 4. in adolescents. Clin Inf Dis. 1994;18(Suppl 1):S21-S3. 5. Bell K, Cookfair D, Bell D, Reese P, Cooper L. Risk factors associated with chronic fatigue syndrome in a cluster of pediatric cases. Rev Inf Dis. 1991;13(Suppl 1):S32-8. 6. Bell D, Jordan K, Robinson M. Thirteen-year follow-up of children and adolescents with chronic fatigue syndrome. Pediatrics. 2001;107(5):994-8. Dr. Andreas Kogelnik Dr. Andreas M. Kogelnik, is the Founding Director of the Open Medicine Institute, a collaborative, community-based translational research institute dedicated to personalized medicine with a human touch while using the latest advances in medicine, informatics, genomics, and biotechnology. The Institute works closely with the Open Medicine Clinic and other clinics to conduct research and apply new knowledge back into clinical practice. Dr. Kogelnik received his M.D. from Emory University School of Medicine in Atlanta and his Ph.D. in bioengineering/bioinformatics from the Georgia Institute of Technology. Subsequently, he completed his residency in Internal Medicine and a Fellowship in Infectious Diseases at Stanford University and its affiliated hospitals. Following his clinical training, he remained at Stanford with NIH funding to engage in post-doctoral research in microbiology, immunology and bioinformatics with Dr. Ellen Jo Baron and Dr. Stanley Falkow, where he explored host-response profiles in severely ill patients. Together with Dr. José Montoya, he was instrumental in the conception, design, and execution of the EVOLVE study - a placebo-controlled, double-blind study of a subset of chronic fatigue syndrome patients with evidence of viral infection. Dr. Kogelnik worked with Dr. Atul Butte in translational informatics to determine patterns that indicated a high risk for adverse events in paediatric patients at Lucille Packard Children's Hospital. Invest in ME (Charity Nr. 1114035) www.investinme.org Continued page 50 Page 49/58 Bell D, Bell K, Cheney P. Primary Juvenile fibromyalgia syndrome and chronic fatigue syndrome

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