Journal of IiME Volume 4 Issue 1 www.investinme.org Around Europe – European ME Alliance Spain The European ME Alliance (EMEA) Liga SFC, Spain, May 2010 Clara Valverde In Spain Liga SFC have been busy. This is a brief summary of what we have done in the past year, since May 2009. Informing and Educating Doctors and Patients a- Distributing and promoting the Canadian Criteria in its Spanish translation b- Writing, publishing and distributing a manual (150 pages) for health professionals on ME/CFS, fibromyalgia and MCS (Multiple Chemical Sensitivities), the illnesses (including the Canadian Criteria) and how to communicate with the patient (the social and emotional aspects of living with these Central Sensitivity Illnesses). 10,000 copies of the manual ("Nuevos retos en la consulta"..."New challenges in the doctor's office") have been distributed by hand to primary health care doctors throughout Spain and more than 20,000 digital copies have been distributed by our web and other webs. We are having tremendous feedback. c- We made a one-hour long documentary on ME, the first in Spanish. It is the voices of ME patients and also includes Dr Nancy Klimas and another Spanish doctor. We have taken the film on tour and have given copies to ME associations in Spain for their own viewing events. Invest in ME (Charity Nr. 1114035) The European ME Alliance (EMEA) was created in 2008 and is a group of European organisations/charities which works together to improve the situation for people with ME/CFS and their families in Europe. It now comprises nine countries -Ireland, UK, Norway, Denmark, Sweden, Belgium, Spain and Switzerland. EMEA’s aims are to - • Establish correct recognition of myalgic encephalomyelitis as an organic illness requiring biomedical research to treat and cure • Establish correct diagnosis of patients • Establish specialised biomedical centres for education/treatment/cures Contact EMEA: Dorp 73 3221 Nieuwrode Belgium Email:info@euro-me.org Web: www.europeanmealliance.org www.euro-me.org Working on behalf of patients with ME (myalgic encephalomyelitis) Page 37/56
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