Journal of IiME Volume 4 Issue 1 www.investinme.org An Effort to Influence Medical Textbook Writers (continued) wrote: “I have done research on this topic myself and understand its' importance. Good luck in sending out the message.” An editor of The Atlas of Pediatrics wrote: “The text is not intended to be encyclopaedic like standard textbooks of paediatrics. Hence, many disorders are purposely not included. I appreciate the need for education about CFS”. Further the editor of Clinical Neuroanatomy and Neuroscience wrote: “Mine is not a textbook of clinical neurology. It is addressed to students who are 'just in off the street' and is designed to convince them that a sound understanding of the fundamentals of basic neuroscience will pay off big time later on in the interpretation of clinical disorders.” Only one reply (8%) of the total responses could be categorized as negative. “While I appreciate your position and I am sympathetic to CFS sufferers it is still a highly controversial topic regarding etiology and not one for which there is sufficient evidence as to cause to include it in a clinical virology text meant for professionals.” While the entire sample size of textbooks (N=119) was large, the sample of editors that responded was relatively small. Hopefully, in the future we can follow-up to see if there are actual changes made in the textbooks. There certainly is a need for more efforts to influence medical textbook writers so that they adequately provide more information about CFS to students in the healthcare field. References Anderson, J.S., & Ferrans, C.E. (1997). The quality of life of persons with chronic fatigue syndrome. Journal of Nervous and Mental Disease, 185, 35967. Bowen, J., Pheby, D., Charlett, A., & McNulty, C. (2005). Chronic fatigue syndrome: a survey of GPs’ attitudes and knowledge. Family Practice, 22, 389-93. Buchwald, D., Pearlman, T., Umali, J., Schmaling, K., & Katon, W. (1996). Functional status in patients with chronic fatigue syndrome, other fatiguing illnesses, and healthy individuals. The Invest in ME (Charity Nr. 1114035) American Journal of Medicine, 101(4), 364-370. Chew-Graham, C. A., Cahill, G., Dowrick, C., Wearden, A., & Peters, S. (2008). Using multiple sources of knowledge to reach clinical understanding of chronic fatigue syndrome. Annals of Family Medicine, 6(4), 340-348. de Lange, F. P., Kalkman, J. S., Bleijenberg, G., Hagoort, P., van der Werf, S. P., van der Meer, J. W., et al. (2004). Neural correlates of the chronic fatigue syndrome--an fMRI study. Brain : a Journal of Neurology, 127(Pt), 1948-1957. Fukuda, K., Straus, S. E., Hickie, I., & Sharpe, M. C., (1994). The chronic fatigue syndrome: a comprehensive approach to its definition and study. International Chronic Fatigue Syndrome Study Group. Annals of Internal Medicine, 121(12), 953-9. Green, J., Romei, J., & Natelson, B. H. (1999). Stigma and chronic fatigue syndrome. Journal of Chronic Fatigue Syndrome, 5(2), 63-76. Jason, L., Fennell, P., & Taylor, R. R., (2003). Handbook of chronic fatigue syndrome. Hoboken, N.J., Wiley. Jason, L., & Richman, J., (2007). How science can stigmatize: the case of chronic fatigue syndrome. Journal of Chronic Fatigue Syndrome, 14(4), 85103. Jason, L. A., Paavola, E., Porter, N., & Morello, M., (2010). Frequency and content analysis of CFS in medical textbooks. Australian Journal of Primary Health Retrieved from http://www.publish.csiro.au/view/journals/dsp_j ournals_pip_abstract.cfm?nid=262&ver=3&pip=PY 09023 Jason, L. A., Jordan, K. M., Richman, J. A., Rademaker, A. W., Huang, C.-F., McCready, W., et al. (1999). A community-based study of prolonged fatigue and chronic fatigue. Journal of Health Psychology, 4(1), 9-26. Lorusso, L., Mikhaylova, S. V., Capelli, E., Ferrari, D., Ngonga, G. K., & Ricevuti, G. (2008). Immunological aspects of chronic fatigue syndrome. Autoimmune Review, 8(4), 287-91. Patarca-Montero, R. (2002). Chronic fatigue syndrome and the body's immune defense system. Page 16/56

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