Journal of IiME Volume 3 Issue 1 www.investinme.org P Prroovviiddiinngg aa vvooiiccee ffoorr tthhoossee sseevveerreellyy aaffffeecctteedd wwii tthh mmyyaallggii cc e enncceepphhaalloommyyeell ii tt iiss Invest in ME has published a book which we hope will help healthcare professionals, media, ME Support groups and people with ME in their quest to improve education regarding Myalgic Encephalomyelitis (ME). The name ' Lost Voices' refers both to the fact that people who are severely ill with ME are generally not in a position to make themselves heard, and also to the way that the prejudiced denial of ME - as an 'aberrant belief' rather than a devastating physical • It clearly and movingly shows the evidence of the devastating impact this physical disease has on individuals and their carers and families • It will bring to more public notice the plight of ME sufferers • It will help change a widespread lack of comprehension based on general misinformation, vague definitions and manufactured statistics, to the development of empathy and concern for those who are so ill illness - has meant that often others are incapable of actually hearing and seeing what is being said and shown. 'Lost Voices' is primarily written by people affected by severe ME- whether as sufferers, carers or families. The book provides the following - • It allows an opportunity for people who are usually invisible and unheard to speak for themselves, so that their situation can be seen and understood more clearly Invest in ME (Charity Nr. 1114035) • It can educate the medical profession, the public and others such as wider family • It will, hopefully, encourage a sense of community among ME sufferers and those supporting them The book is an A4 landscape size with a laminated card cover. The stories and photographs are provided by carers, families and, as far as possible, people with ME themselves. 'Lost Voices' represents Continued page 3 Page 2/76
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