Journal of IiME Volume 2 Issue 2 www.investinme.org The European ME Alliance The European ME Alliance has invited other organisations across Europe to support their objectives to change the perception of this illness and force change in government policies and accept the urgent need for biomedical research into the illness in order to establish treatments and cures for this devastating illness. Member organisations of EMEA have agreed the following principles –  Members of the European ME Alliance endorse the principles of the 2003 Canadian Consensus Document for Diagnosis and Treatment for ME/CFS.  Members of the European ME Alliance endorse the principles of the 2006 paediatric definition from Dr Leonard Jason et al.  Members of the European ME Alliance promote the fact that ME (myalgic encephalomyelitis) is a neurological illness in the World Health Organisation’s International Classification of Diseases.  Members of the European ME Alliance understand the necessity to use the composite term ME/CFS at the moment for ease of reference/standardisation.  Members of the European ME Alliance support biomedical research into establishing sub groups of ME/CFS which will lead to treatments and cures for this illness.  The European ME Alliance has, as an objective, the preparation and promotion of a common set of Invest in ME (Charity Nr. 1114035) documentation, in all languages, for Alliance use that is supplemented by local information. The founding members of the European ME Alliance are - Belgium ME-Patientenvereniging Denmark ME-NetDK Ireland Irish ME Trust Germany Fatigatio e.V. Norway Norges ME-forening Sweden Riksföreningen för MEpatienter UK Invest in ME More details will be available in the coming months on the web site at www.europeanmealliance.org or www.euro-me.org. ME Story I've been dismissed, ridiculed, had so called medical professional try to humiliate me. I've had friends and family turn away from me. I've felt alone, been alone. I've felt depression, frustration, despair and anger at the way I've been treated over many years. And I've seen how the attitude of the medical profession changes completely when one of their hallowed tests comes back with a 'positive' result. All it took for me was the great good fortune of finding one doctor who listened to her instincts, that I was genuinely physically ill, and who persevered in trying to find the cause of that illness regardless of how elusive. - Jim Page 16/74

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