Journal of IiME Volume 2 Issue 1 Experiences of Care in Institutions with Severely-Ill People with ME (continued) • Khan, E., Spence,V., Kennedy, G. et al. (2003). Prolonged acetylcholine-induced vasodilatation in the peripheral microcirculation of patients with chronic fatigue syndrome. Clinical Physiology and Functional Imaging, 23(5); 282-5. • Kreyberg, S. (1999). ME/CFS En innføring for foreldre og andre som arbeider med barn ogunge hjemme eller i institusjon. Stensil, Universitetet i Oslo, August 1999: Appendix. http://www.kronisktraethedssyndrom.dk • Kreyberg, S. (2004a). Kronisk/postviralt utmattelsessyndrom. Tidsskriftet for DenNorske Lægeforening, 124; 2382-3. • Kreyberg, S. (2004b). Pasienter ut av av ingenmannsland. Norsk Epidemiologi, 14(1); 79-83. • Lindal, E., Stefansson, J. G. & Bergmann, S. (2002). The prevalence of chronic fatigue syndrome in Iceland - A national comparison by gender drawing on four different criteria. Nordic Journal of Psychiatry, 56(4); 273-7. • Peckerman, A., Lamanca, J. J., Dahl, K. et al. (2003). Abnormal Impedance Cardiography Predicts Symptom Severity in Chronic Fatigue Syndrome. The American Journal of The Medical Sciences, 326(2); 55-60. • Rowe, P. C. (2002). Orthostatic intolerance and chronic fatigue syndrome: New light on an old problem. The Journal of Pediatrics, 140(4); 387-9 • Spence,V. & Steward, J. (2004). Standing up for ME. Biologist, 51(2); 65-70 • Streeten, D. H. P. & Bell, D. S. (1998). Circulating Blood Volume in Chronic Fatigue Syndrome. Journal of Chronic Fatigue Syndrome, 4(1). • Waaler, B. A. & Eriksen, M. (1992). Post prandial cardiovascular responses in man after ingestion of carbohydrate, protein or fat. Acta Physiologica Scandinavica, 146; 321-7. • Waaler, B. A. Eriksen, M., & Janbu, T. (1990). The effect of a meal on cardiac output in man at rest and during exercise. Acta Physiologica Scandinavica, 140; 167-173. • Waaler, B. A. & Toska, K. (1999). Fordøyelseskanalens store og vekslende behov for blodtilførsel. Tidsskriftet for Den Norske Lægeforening, 119(5); 664-6. Student Doctor "I am horrified, but not entirely surprised by the behaviour of the GPs and psychiatrists involved in this case ( the Sophia Mirza story). I am currently medical student, and I can promise you that I will never forget this case when I am a doctor. I think that the attitudes towards CFS are changing (no doubt largely thanks to Sophia and her mother), but there are still many women who are treated as mentally ill, simply because doctors cannot readily explain the causes for their disease. I send my wishes for full recovery of all the patients using this site and thank you for sharing your story." - Daphna Invest in ME (Charity Nr. 1114035) Page 16/34 www.investinme.org ME Story Throughout school, I was always exhausted and finally came down with EBV when I was sixteen. Although all my friends had mild cases of this, I was incapacitated to the point that I was hospitalized at times and had to leave school for months while I recovered. By now, I was beginning to wonder about my health. I was the "sickest" person I knew with the lowest pain tolerance, despite eating well and exercising. The GP hardly acknowledged me, and told me that it was normal and that I should stop being a hypochondriac. To appease me, he ran various tests and after finding nothing serious or conclusive, told me that he had been right and I should just rest. Now, nearly eight years later, going from a student at the top of my class with an unlimited future to a dependent, rather helpless person with no real hope for healing is something that only others in this situation can understand. Meeting new people, and having them ask, "what do you do?" makes me cringe. The amount of shame and isolation at times is unbearable, but there is also a glimmer of hope that with greater understanding will come better treatments or at least compassion. - Vickie
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