4

N0 03 | May 2016 | www.mycyfapp.eu/es/ | F Mycyfapp | T Mycyfapp | P Mycyfapp | A Mycyfapp MYCYFAPP AROUND THE WORLD: SCANNER MAGAZINE APRIL 2016 The interview with Jessie Hulst about MyCyFAPP project was published in the monthly Magazine of Erasmus MC. OTHER NEWS ESPEN - ESPGHAN - ECFS GUIDELINES ON NUTRITION CARE FOR INFANTS, CHILDREN AND ADULTS WITH CF. Achieving an is to maintain optimal nutritional status in CF patients important better pulmonary function and to prolong survival. These new guidelines update the ECFS guidelines delivered in 2002 and include a variety of topics to address nutritional care in infants, children and adults. Statements were discussed, submitted by a panel of experts and then reviewed by ESPGHAN and ECFS and accepted in an online survey among ESPEN members. The most relevant updates include sodium, minerals and vitamins. supplementation, specialized nutrition-related treatments such as essential fatty acid and probiotics. Attention has been paid to change induced in clinical problems of the disease that have emerged due to improved survival: bone disease, CF-related diabetes, liver disease, pregnancy. SOCIAL NETWORKS AN INTERESTING INTERVIEW SERIES COMING SOON ON YOUTUBE. STAY TUNED! ALL-NEW UPDATES ON MYCYFAPP PROGRESS ARE AT OUR SOCIAL NETWORKS. FOLLOW “MYCYFAPP”!! 25TH ESPGHAN 49TH -28TH ANNUAL MEETING, MAY 2016, ATHENS (GREECE): - In vitro assessment of the influence of intestinal pH and enzyme/substrate ratio on fats digestion in CF patients. An e-poster will be displayed on Friday, 27 May 2016 at 13:45. - J. Calvo will also present MyCyFAPP Project during the pancreas and liver working group session. Presenter: Joaquim Calvo Lerma, HULAFE (Valencia, Spain). http://www.espghancongress.org ECFS 39TH COMING SOON: CONFERENCE, 8TH -11TH JUNE 2016, BASEL (SWITZERLAND): -Nutritional status, nutrients intake and enzymatic supplements in a European CF cohort: a cross-sectional overview. Presenter Joaquim Calvo Lerma, HULAFE (Valencia, Spain). -Nutritional habits’ characterisation in a European paediatric cystic fibrosis population: a multicentric survey. Presenter Tiago Martins, AIDFM (Lisbon, Portugal). https://www.ecfs.eu/conferences/basel2016 MYCYFAPP 3RD 27th -29th PROGRESS MEETING June 2016 in Rotterdam (The Netherlands) THE MYCYFAPP CONSORTIUM: We are a multidisciplinary research team, integrated by nutritionists/dieticians, paediatric gastroenterologists and pulmonologists, food technologists and engineers. IT experts, game developers, software developers, psychologists, biologists and patients’ representatives who will bring their expertise to ensure the successful development of the project through a holistic and integrative approach of the differente and complementary areas of knowledge and experts included. 4 http://www.erasmusmc.nl/medewerkers/?lang=en