Journal of IiME Volume 7 Issue 1 spirit trapped in a body that will not work! Invest in ME want to change that. And, as to losing the 50 lb, it is something I really need to do, although I do not know who is going to keep Mr. Kipling in business without my help ;) Invest in ME’s JustGiving pages are here - http://www.justgiving.com/investinm-e (May 2013) Sarah’s JustGiving Page Sarah’s fundraising page is here - http://www.justgiving.com/Sarah-Louise-Jordan Thanks for taking the time to visit my JustGiving page. M.E is a horrible illness suffered by over 250,000 people in the UK and no cure or cause is currently known. I'm raising money for research into M.E as it's an illness that I and many of my close friends suffer from and I want to do my bit to help change that! I've taken the following information off the charity's website because I think it explains things better than I can: 'People with ME need early and correct diagnosis, proper treatment and advice. The current status of services for people with ME and their families in the UK is poor with little knowledge of biomedical research being applied and possible treatments not being made available to patients or healthcare staff. Simplistic and ineffectual psychological therapies are offered in place of real treatments - wasting public money and doing nothing to help patients. This has resulted in ME patients having no real healthcare service and far too little progress in attracting new researchers or clinicians to study the disease. The dangers for people with ME having no proper clinical examination and no access to possible treatments is that the disease can develop into more severe forms with significant loss of functioning. There is also the danger of mis- or missed diagnosis – a common problem with people thought to suffer from ME.' Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity. So it’s the most efficient way to donate – saving time and cutting costs for the charity. So please dig deep and donate now. Invest in ME (Charity Nr. 1114035) www.investinme.org Companies can also use JustGiving to support Invest in ME. The more awareness and funds we can raise the sooner there will be treatments for people such as Sarah. ME QUOTES "ME/CFS is disabling and has a greater impact on functional status and well being than other chronic diseases such as cancer. The emotional burden of ME/CFS is felt by lay carers as well as by people with ME/CFS. We suggest the use of generic instruments such as SF-36, in combination of other objective outcome measurements, to describe patients and assess treatments." Nacul et al. BMC Public Health 2011, 11:402 http://www.biomedcentral.com/14712458/11/402 ME QUOTES "After acute infections, enteroviruses can persist in patients resulting in manifestation of ME/CFS. Chronic enterovirus infection in an immunocompetent host may be an example of a stalemate between attenuated, intracellular viruses and an ineffective immune response.",Chia, Chia: EvMed Research, California, USA http://bit.ly/10krfqn Page 23 of 36
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